đź“Ł ADDS 2027 Save the Date!

We hope you'll consider joining us for our 5th meeting, ADDS 2027, taking place Feb 8-10, 2027 at the Georgian Terrace Hotel in Atlanta, GA.

NOTE: Our office will be closed Friday, June 19th in observance of Juneteenth. We will reopen at regular business hours on Monday, June 22nd.

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Sylvain Zorman, PhD

Director of Digital Health Sciences

ALS, Data Science, Algorithm, digital measure, wrist-worn wearable, real-world environment, patient centricity, neuromuscular disorders

Advancing ALS Research with DHTs: Where Are We Now?

Amyotrophic Lateral Sclerosis (ALS) is a devastating, progressive neuromuscular disease that has...
4 Minute Read
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digital endpoints, sleep, usability, scratch, fit-for-purpose, real-world environment, regulated clinical trials, patient centricity

Evaluating Usability and Incorporating the Patient Experience in DECODE-Nocturnal Scratch

The Digital Endpoint Collaboration to accelerate Outcome DEvelopment (DECODE) Nocturnal Scratch...
4 Minute Read
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DiMe, clinical research, digital endpoints, sleep, scratch, real-world environment, regulated clinical trials, patient centricity

Developing a Patient-Centric Measure of Nocturnal Scratch: A Q&A with DiMe

The adoption of wearable Digital Health Technologies (DHTs) to measure outcomes of interest in...
5 Minute Read
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clinical research, Data Science, protocol adherence, wearables, ActiGraph Science Team, DHT Operations, adherence

ActiTrack Adherence Monitoring: Maximize the Value of Wearable Data

In the evolving landscape of clinical trials, wearable digital health technologies give clinical...
1 Minute Read
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actigraphy, ALS, Data Science, DHT, medical-grade wearables, wrist-worn wearable, ActiGraph, fit-for-purpose

Validating Wearable Technology for ALS Research | DEAR Grant Profile

The development of new drugs for rare diseases is hampered by the lack of precise and reliable...
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